I have retired from my clinical practice, so I am not able to offer individual advice. However, there are many dedicated professionals working in a variety of organisations who are available to help if you have questions or concerns.
This is a list of some of the websites that may help you to deal with your own questions and concerns. It isn’t comprehensive, is mainly UK-based, and there may be excellent services available to you that I am unaware of. I haven’t attempted to make this an exhaustive list, but it’s a place to start.
All of these links are run by organisations that will ensure that they are reasonably up-to-date. If you find other helpful websites, do compare their advice with the advice available through these links. If it looks similar, you have probably found something you can trust. If the information on unlisted sites is very different from those in this list, treat it with caution.
I hope you will find the advice you are looking for, and with it the peace of mind that makes our difficulties endurable.
Cruse offers listening support to the bereaved, and resources that include a website for young people and training for professionals who encounter the bereaved including educators, health and care workers, and youth workers.Visit website
An initiative to enable patients, families and professionals to work together to plan for any foreseeable emergencies and respect patients’ preferences about where and how they would like to be cared for. Useful for anyone with long-term health problems, and documents include helpful check-lists to ensure different aspects of care have been considered. Being used in several areas of the UK, but the information applies anywhere.Visit website
For children and young people with life-shortening conditions to have as fulfilling lives as possible, and the best care at the end of life.Visit website